My kid is weird.
I am aware that I sound like One Of Those Annoying Parents, who thinks her kid is Unusual. I do wonder if something is wrong with her sometimes. She never answers questions. Never. "Sascha, you want some tomatoes?" Her answer is "tomatoes!" mixed in with some gibberish. Never yes or no. I don't worry about her being autistic; my cousin is an autistic specialist. She asked me some key questions, to which I apparently gave the right answers. But is there a gray area between autistic and just weird?
She only misbehaves when Nick and I are around, which is normal. However, I am wondering about the amount of normal misbehavior. How many tantrums are too many? She spent almost two hours having a tantrum this morning. She will throw herself on the floor and start screaming with no provocation whatsoever. My sister has noticed that Sascha doesn't acknowledge you when you speak to her; not even a glance. (There are no hearing issues.) She and my mom want me to call a doctor for a psych eval. Nick disagrees, but I know they're right. This just makes me sad, more than anything. I don't have a normal kid.
In ways, it's cool. We have this book, and the other night Sascha picked it up and recited every word of it from cover to cover. I looked at Nick: have you been reading this to her a lot? Him: No, only a few times. Me: Me too. Her babysitter doesn't have that book. My mom doesn't have that book. She has memorized the whole thing from maybe 5-6 readings. She'll do that with Sesame Street skits, too. She'll go around the house reciting entire blocks of dialogue-- and she doesn't even watch that much TV anymore. It's freakish. Someday she'll find the cure for cancer, then promptly begin shooting people from a clock tower in a tinfoil hat.
Enough about Rain Man. In a related story, we've decided to wait another month before we start trying again for #2 (it was going to be April). I can give all the weak excuses about timing and the school year and maternity leave and whatever, but the truth is, Sascha is quickly eroding our desire and energy for a second. One of the reasons I am wanting a second is so that I can throw the dice on maybe getting a normal baby. One that won't hate me. At least not until it's a teenager, when it's supposed to.
I've also decided to take a break on the weight loss. I've lost 10 lbs and I'm officially down to my pre-pregnancy weight. It feels fantastic. I'm not gonna lie. I feel so, so great. I would still like to lose a few more before summer. I was just starting to feel punished all the time with the I-can't-eat-that and I-have-to-go-running. I knew it was time to give it a rest last week when I was supposed to work out one day after school, and I was so down about it. I was really bummed out, and burned out. I decided to rebel and said screw it! And my mood skyrocketed. I popped open some wine, broke out "Songs in the Key of Life" and danced around my kitchen. So I'm going to give it two weeks or so off, and then one last big push of 2-3 more weeks on.
More things to file under White People's Problems: money. Things were looking so awesome recently. We were just a couple months away from being completely out of credit card debt and ready to start saving, something we've never done. And we've never done it because something always comes up. So naturally, today, our furnace died. We woke up this morning going "hmm, it feels kinda cold..." and sure enough. The worst part of it, to me, is that we don't know what the problem is (although we do know our furnace is old and we've had problems with it before). We could either get a new one, and have it turn out to be a $50 problem, or we could pay out the nose for a plumber to come to the house, only to tell us we have to replace it, thus paying out the nose twice. We want to try to get by on space heaters since we're so close to spring (New England hasn't gotten the memo from the calendar that it IS in fact spring, and said memo won't arrive for another month or so), but tomorrow's high is supposed to be thirty-one fucking degrees. 31. I'm not sure a space heater can compete with that, but I also know that a new furnace isn't going to materialize in 24 hours, so we don't have much of a choice. Good times.
The selfish child (or, I'll admit, selfish yuppie) in me is disappointed that I may have to put off my garden for another year. The startup costs are too high. I can't do it without a fence-- I know what it feels like to lose everything to groundhogs. Even though I will be putting in a cheap fence myself, it's still a good chunk of money. And my neighbor just told me that we have about six inches of soil in our neighborhood, then it's all rocks and boulders under that. I wasn't planning on doing raised beds (although I'd love them), but it looks like that may be my only choice. And they aren't cheap. So... that is hugely disappointing. I don't know. We'll see. I might have to do it on credit simply because of the time constraints; I can't start a garden in October when I do have the money. But damn. We were so close to being in the black.
Nick just called me into the other room to show me that the picture on our 3-year-old TV is almost gone. That too. Lovely. Good thing we don't need a TV to keep us warm.
Sunday, March 22, 2009
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Is that cousin Mandy? Anyway, there is a gray area called PDD by the experts. Let me preface all of this by saying I know what I know as as a school counselor and former special education teacher, and my favorite LSSP in the world was my work husband for two years, so I paid a lot of attention to him and his evaluations and his diagnoses, about some of which he would consult with me. But I know I am no expert. Pervasive developmental disorder is sort of a catch-all diagnosis...after you rule out some more specific things, sometimes you are left with PDD. And it's somewhat controversial and there is a lot of disagreement about it in relation to ASD. Autism and the other disorders on its spectrum have gotten a lot of press in recent years, which is good, and the numbers out there are scary, but are the numbers a result of over-diagnosis? I don't know. I just know that diagnoses tend to go in trends...I know the names of the doctors in town popular among parents with concerns...we know who thinks everyone has ADD, we know a few years back every kid was bipolar, and now we see more ASD diagnoses. For example, kids I would never ever suspect have Asperger's based on my experiences teaching kids with Asperger's eight to ten years ago are now coming in with this diagnosis. What I can say for sure is that if a child has some sort of developmental delay or disorder, early intervention is key, so although Nick may be opposed to having Sascha evaluated, it might be in her best interest to do that so you can see if she is just brighter than bright and maybe a little socially awkward as a result or if she truly has an issue. Keep in mind that if she does have a delay of some sort, she is likely eligible for PPCD there in Lowell at the age of three, which includes speech-language therapy, which can work wonders for kids who need to work on their use of language in socially appropriate ways. There are as many kids out there in therapy for language as there are for speech...it's not just about sounds, for sure. My friend Becky had her daughter evaluated just after she turned two...she didn't talk, so they ruled out hearing and her ability to speak and the neurologist recommended an autism evaluation after that because not only did she not speak but she didn't respond directly to anything they said. She did get a diagnosis of autism, which she (also a former special education teacher and school counselor) and I weren't 100% on, but we both agreed the interventions would only help her in the end. They paid out the nose for all the private therapies insurance doesn't cover for kids with autism until they moved to our district, known for its autism services, and she was placed in PPCD. That plus the dietary changes (no dairy, now wheat...with some exceptions) plus a little melatonin to help her sleep calmly rather than thrash about all night have helped her quite a bit. So. That's my story. For what it's worth. :)
Hey-- what is PPCD? (I think you are the queen of acronyms.) Yeah, it's Mandy, and when I talked to her she said no way. But who knows? Nick is open to it, apparently.
And speaking of Nick, he fixed the furnace!!! Hurrah!!
I'm not sure "developmental disorder" feels right. I don't feel like she's necessarily behind on anything. Girl just has a temper like nobody's business. What rules out the food sensitivity issue for me is that she doesn't do this at my mom's or Erika's house, and she eats the same stuff there.
I don't know-- we're tired of talking about it. It's been a long day. It's 8 pm and we're both still in our pajamas. From this morning. I went to the store like this. With my *taped* glasses. Oh yes I did. I half expected to see "What Not to Wear" cameras lurking.
Clinton would be appalled at your attire, but it sounds comfortable. PPCD (Pre-School Program for Children with Disabilities) is the acronym Texas (not sure what other states call it) uses to address the part of IDEA (Individuals with Disabilities Education Act) that states kids who qualify for services are entitled to them in the public school system at the age of three. That includes speech-language services. Keep in mind the idea of a developmental delay is broad...if a child should be answering an adult's questions at a certain age and she isn't, that could be considered a developmental delay. I don't know what the age is for the example you gave about Sascha. My friend Michele (who gave me Gabby) is the SLP (Speech Language Pathologist) at the elementary school where I counseled (and where Dave was the LSSP-Licensed Specialist in School Psychology) and she has many ECers, what she used to call her Early Childhood kiddos. Some were speech (the actual formation of the sounds) and some were language (the use of speech in context and appropriately). With the little ones, a lot of it was the ability to focus and respond, and for most that was just a language delay, not necessarily a symptom of a bigger problem. Maria, Ana's mom, is a SLP as well, and in her district they even go to daycare centers to serve the ECers in their environment. There is a lot of intervention out there...just depends on whether Sascha actually has an issue. My friend Dave also used to say you couldn't have an IQ over 150 without having some kind of issues, so maybe Sascha is just scary smart and all that brilliance is overwhelming the crap out of her. :) I know about the acronyms...I can't help it...it's the special education background...nothing but acronyms in that world!
After working in special ed. for a number of years, granted not as a teacher or counselor like Lisa, obviously because I don't have a degree, I favor having Sascha evaluated. I worked with Special Ed kids with a different array of problems and I loved every minute of it, as hard as it was. It is better to have her evaluated and like Lisa said, early intervention is highly important. Maybe there is nothing wrong and we pray that there isn't, but if there is both you and Nick are being great responsible parents by checking it out. Nothing to lose and everything to gain. As always lots of love.
congrats on your furnace now working! (see, us men are good for something: we tinker w/stuff, just to make it look like PRESTO!)
and i think Sascha's just oddistic: that's where it seems weird, but she's just really smart, and taking her parents for all their worth (which is kinda what a kid does anyway) Have her evaluated: at the very least you will learn something new about her, and i'm sure she'd enjoy the testing. Unless it involves needles.....
"Oddistic"!! Cute, Brian.
Have I mentioned that she knows the difference between "mouse" and "mice"? One mouse. Three mice. Insane.
OH MAN....too smart. see, some things they just "get" early! by the way, i know she has crib tantrums, but Myles started climbing out of his crib at 18 months, so we HAD to put him in a normal bed. SO....if you get her a bed, it would be a REWARD. Now granted, it doesn't work for a little while. And lifting her in and out of the crib will be a pain. But if she can't do it herself yet, it's a good punishment. "ok, do you want to be in your BED, or your CRIB?" and if she keeps to the crib, no real loss.
I love that idea!! I have a lot of friends with kids younger than Sascha who are putting them in beds now. It makes me feel kind of bad, because I know she's nowhere near that stage yet, and I would love to get in bed with her and read stories at night.
I don't know-- if her crib is seen as punishment, that opens up a whole new can of screaming worms. But I will keep that one in mind...
the +'s and -'s of the crib is a WHOLE new topic. but a good one
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